From the moment you entered this world,
with your blue-tinged fingers and toes,
God instilled life into you.
He gave you the strength to breathe,
to cry, and to know when you were hungry.
The ability to experience pain,
but also comfort and joy.
The courage to speak ,
through your bold dark eyes,
and your slow twitching head,
when you got so mad.
The ability to know love,
on such a deeper and powerful level.
Your body responded so well to touch,
and to voices that you recognized.
You also loved to be held all the time,
and cuddled up close to someones neck,
in the knee-chest position.
Through the many trials and tribulations,
you continued to defy all odds placed against you.
You created a new image for Trisomy 13 babies,
and you showed people to look deeper than your “label”.
You showed me how to take my label of a “nurse” off (at times),
and realized what a precious gift from God I had in my arms.
You were the rock,
when everything was falling apart,
and you somehow drew our family closer than ever before.
The day you left to go be with your brother,
was unlike no other.
I have seen patients pass away before,
but nothing like yours.
You were in my arms,
and I never wanted to let you go.
Yet, it was like pure magic.
Spirit drifted out of your body,
and I all of the sudden
got this overwhelming feeling
that you were gone.
That’s the moment,
your Daddy and I knew,
life would never be the same.
11 months have passed,
yet it still feels like it was yesterday.
We will miss you forever Rochelle Elaine Johnson. 11/6/15-1/7/15
©2015 Sheridan Johnson @Journey with the Johnsons. All Rights Reserved.